What’s in a Care Kit You Can’t See
ETHNOGRAPHY: Ethnography is observing people behaving normally in their own environments. It’s not interviews or focus groups. CSI researchers shadow patients at home, at work and everywhere to understand the PATIENT POINT OF VIEW on self care.
Pharma companies pay 100s of thousands of dollars for ethnography. This research reveals hidden barriers to adherence and surprising keys to self-care success. Ethnography exposes gaps in other approaches.
These insights form a new approach—the CSI curriculum—that all goes to work for you when you give your patient a CareKit.
What’s in a Care Kit You Can See
CSI clinicians test equipment from the PATIENT POINT OF VIEW. Examples:
- Seniors often have old analog scales. A large print digital scale—non-skid, non-tip—helps vision, prevents falls.
- None of 384 diabetics researched had an objective way to test feet. The Blood Sugar kit delivers a mirror and a monofilament.
Patients report, “You saved my life!”
CSI linguists and artists apply the PATIENT POINT OF VIEW to current clinical standards, step-by-step.
- 4th grade reading level—or lower
- Camera angle as the patient sees
- Goals, not topics, organize tasks, a radical shift that wins adherence
- Images are not merely decoration, but add and clarify meaning
Patients report, “I finally get it!”
The PATIENT POINT OF VIEW at times reveals no device exists for a need. So CSI invents them.
- Injection sites to rotate are hard to remember. CSI invented a 3-tier reminder wheel to set once a month
- Pins and zipper bags can cause surgical drains to yank out at home. CSI invented an adjustable, waterproof belt bag. Two in a kit means wear one right in the shower!
Patients report, “Now I can do it right!”
Practical and Useful Point-Of-Use Tools
The tools we invent for every kit reflect HOW and WHERE patients conduct their self-care. That old binder of photo-copied materials gets buried under a stack of papers and mail. These NEW tools get used ALL OVER THE HOUSE to remind and direct patients to comply WHEREEVER they perform their tasks.